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What’s in a name?

September 17, 2014

I always thought that being able to know what was “wrong” with me would make it easier to solve. Well there is a name for what I have been dealing with for the last who-knows-how-long. Fibromyalgia  (a link for those interested) All the pain, tiredness and general feelings of blah do in fact have a name, which is some relief in and of itself, I suppose. Unfortunately knowing is not “half the battle” as some would have you believe. Having a name does allow for a better set of plans in terms of management, but at the same time it doesn’t make it go away.  I am still in the learning phase (and probably will be for a while) but for now it is just a matter of trying to come to terms with the diagnosis as well as the syndrome itself. But in somewhat other news….

Life is moving slowly here at the home of the Introverted Knitter, this past weekend the Giant and I finally found a couch we liked for a decent price for our “formal living room.” In order to prepare for this we had to actually unpack a fair amount of boxes or at least move some of them out-of-the-way. Me being me I decided to take it upon myself to try to DO ALL THE THINGS and promptly sent myself into an exhausted mess. Sunday found me napping/resting for most of the day, it didn’t seem to do much good, but the cats definitely enjoyed having a lap (or legs, or face in one instance) to rest on. Monday found us both at work and news that the Giant’s parents would be stopping by for the evening on their way back from visiting other family. No problem, except it meant attempting to clean and organize the mess from Saturday as well as make space for them to camp out for the night. The Giant certainly did the lion’s share of the work, but I stubbornly tried to help (and drove myself into a further worn out mess.) So Tuesday was a day of pain and fatigue and I ended up leaving work early to come home and sleep, and sleep and you guessed it….sleep.

Speaking of sleep the Giant made an interesting observation the other day concerning this whole diagnosis, after taking a three-hour nap he asked how I was feeling. When I responded that I didn’t feel much better (aka was still exhausted and tired) he said that it’s hard for him to imagine what it must be like to sleep that long and not feel rested. Which for me really drove home the point between healthy and chronic illness. Luckily he is one of the most understanding people I know and has been a great support system through this whole mess.

So how was your weekend?

 

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From → Writing

4 Comments
  1. Marja permalink

    I hope that you can get to a point of good pain management with this disease soon! I hate seeing you in pain.

  2. I sympathise because I have issues like that too. I have had Guillame Barre Syndrome in the past and that was very unpleasant too. My mum had fibromyalgia. I think they are both auto immune diseases? I sleep a lot too and don’t seem to have as much energy as I should have. I hope you get some relief soon. Perhaps you should limit your activity until you feel a bit stronger?

  3. Glad you know what it is, but I have had family deal with that mess – it is a tough one to beat, I wish you luck. Glad the Giant is understanding about the long naps and generally lousing feeling! Keep taking care of yourself.

  4. At least you’re getting support and information! Medical issues always suck and are scary 😦

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